The Trifecta, Or, How to Haunt Yourself for Years to Come

Black and white photo of a bedsheet ghost standing outside in the grass. The person is small, and their white sneakers can be seen. They are glowing faintly.

In 2016 my editor assigned me an article about a then-recently identified genetic association between three medical conditions: postural orthostatic tachycardia syndrome (POTS), hypermobile Ehlers Danlos syndrome (hEDS), and mast cell activation syndrome (MCAS).

As it so happens, I have all three of these. After minimal reflection, I decided to take a journalistic risk and write the story in the first person, including some information about my own illness experience. I talked about my bizarre sunlight allergy and joint dislocations, and the stress of not knowing when my immune system will detonate next.

I talked, too, about how the three conditions often come as a box set: people who have one of them are more likely to also have the others. In my article, I called this comorbid trio “the trifecta”— just my flippant way of emphasizing their interrelatedness.

Seven years have passed. In that time, scientific knowledge of all three conditions has advanced, albeit not as much as I’d like. My symptoms and daily experience have shifted, as has my relationship to my body. The way I talk about my illness—including whether I talk about my illness—has changed. I’m not embarrassed by the 2016 article, exactly, but if I were to write it today, I’d approach it very differently. “Still, what’s done is done,” I would say. Ordinarily.

But this damn article just will not rest.

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Small Rhythms

My 16-year-old is leaving alone for a month of language school in Tokyo. Being born and raised outside of towns under population 700, closer to 300 in some cases, should put a dizzying spin on the experience. We’ve had epic urban adventures together, but not off this continent, certainly not in the vast compression of Tokyo. Send up a good thought for the kid because I’m understandably nervous. Meanwhile, I’m absolutely assured that they’ve got this.

I have three pieces of advice. You’ll be traveling solo, so double your wits about you. If you’re curious about something, if it draws your eye, explore farther. And, find small rhythms.

The latter is my joy. Helen Fields wrote about it for LWON last week with her sidewalk mulberries.

I advise that whatever rhythms you chance into, take note, brushing teeth at a wash basin before bed, sending out a text from the same place (to your dad), leaving the host family door and turning left (or right) to walk into the city. Every day you’ll spot the same odd street sign, blast of graffiti, or a constellation of gum stains on the sidewalk. Nod to them as you pass. Begin to detect the cadence in the encounters you have.

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An adventurous reunion

My best friend lives in Saskatoon, Saskatchewan. Despite meeting her over Zoom every Saturday since 2018, I’ve only seen her in person a handful of times. So when she came to visit me this Spring we decided to do something deeply silly to celebrate. Ottawa is not known for its high sophistication, but we do, apparently, have a restaurant that serves 44-course dinners. The four-hour seating sounded perfect for a thorough catch-up.

I’ve walked past Atelier nearly every day for years thinking it was a condemned house. It’s just across from the Booth Street complex, the old Canadian government geology district that is being razed, and it had a grated window, no sign, and kind of a rusty staircase railing. Rough-blasted boulders form the yard. You have to know it’s there, is what I’m saying.

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Snapshot: Mulberries, Sidewalk

It was a Wednesday morning, the last day in May. I’d been at the emergency room until the wee hours with a loved one and I needed to be asleep, but my brain had other plans.

Me: how about sleep?

Brain: Alternative proposal: how about obsessing over your problems, such as this loved one who is currently in the hospital?

Me: [sigh]

But I know a trick or two after 47 years in this brain, so after a while of trying to soothe it back to sleep with a book, I put on presentable clothes, tied my shoes, and took my brain and my body out for a walk.

I took one of my pandemic walking routes around the neighborhood. I don’t remember much about this walk, but I can tell by the evidence that I stopped to take a picture. I’ve lived around those black sidewalk smudges for decades, but only in the last couple of years have I realized that they are a sign to look up and stuff my face with mulberries. I don’t even remember if did that this time. I continued on to my local coffee shop, bought a latte, downed it, went back home, and conked out for a few more hours. (Like I said, I know some tricks about this brain.)

I haven’t had the chance to reflect on all that has happened in the last month, so I’m not reflecting on it here. I don’t have the brain space to think about anything else, either. I’m not even spending that much time outside. The mulberries did their thing mostly without me this year. I guess I’ll catch them in 2024.

photo: Helen Fields

June Gloomier

If you have been at LWON for a while, you might have noticed that I post this one every year–because somehow, once again, it is June. And once again, it is gloomy. But things have been extra-cloudy this year, and people who don’t live in California have noticed! I mean, the Washington Post was even lamenting our gloom, so you know it’s been bad, with a solid month of fog in May and even some unseasonal rainstorms. (If you’re feeling too gloomy to read this post, there’s a charming explainer of how June Gloom works from the LA Times.)

But things are looking up. July will reportedly be flush with sunshine and even heat. Now, about those wildfires . . .

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I used to think the weather was something adults talked about because they were boring. And now that’s me, commiserating with neighbors about the state of our sky, which gave us a glorious, bluebird May and then rolled out a thick cloud carpet on the first day of June.

June Gloom isn’t just a Southern California phenomenon, and it doesn’t only happen in June. But perhaps we give it a name (and May Gray, and, in dire situations, No-sky July and Fogust) because we complain about it the most. The response from an Oregonian friend who visited this week: “Talk to the hand.”

(When I later looked at the Wikipedia entry for June Gloom, the authors concurred: “A similar phenomenon can occur in the Pacific Northwest between May and early July, though the phrase “June Gloom” is not nearly as commonly heard as it is in California due to the frequency of cloudy or overcast weather throughout the year in the Pacific Northwest.”)

Sam Iacobellis at Scripps Institution of Oceanography talked me through how SoCal’s gloom works.  Different parts of the coast offer their own complications, but generally speaking, the cold Pacific water—aided and abetted by the California Current and the upwelling—and a high pressure region, the Pacific High, conspire to form the marine layer clouds that some of us call gloom.

Usually, the atmosphere gets colder as you head up. But the cold water creates a situation where the air near the water’s surface is colder than the air above it: an inversion. The Pacific High pushes air downward, compressing it and warming it. Together, this forms a stable inversion air that can hold a layer of cloud near the water’s surface like an older brother crouching on an upstart sibling.

Gloom often dissipates in the afternoon, as sunshine warms air near the surface. The warmer air mixes into the clouds and starts to break them up.

Of course, there’s a lot more than that going on, too. The gloom is the home of a wild kind of cloud field called actinoform clouds, which, to a satellite’s eye, look like enormous leaves or pinwheels. And the ocean itself might be providing more than just cold water. Iodide released by kelp may turn into cloud condensation nuclei, which could make clouds thicker and more pervasive.

All this fascinating stuff doesn’t prevent me from being boring. But I also think I was a bit too harsh on weather as a conversational topic. Yes, it is something to talk about when there’s nothing left to say. Yet it’s also a shared experience that has the potential to affect everyone.

When someone I don’t know very well says, “this weather is making me crazy,” I feel like I really do understand, more than if she talked about how her kids or parents or work was setting her teeth on edge.

Weather connects me to other times, too. I can imagine the Chumash, who lived on this coast long before the rest of us showed up, standing on the bluffs when the clouds start to break up. Those first rays of sunshine feel so needed that it almost feels like my skin is consuming them; I wonder if one of them felt this way, too.

Even when the gloom doesn’t lift all day, there are ways to enjoy it. There’s a contest that’s been going on for the last ten years or so among a few Scripps employees to guess the number of gloomy days in May and June.

I asked if there was any trick to forecasting gloom. Events that affect sea surface temperature, from the El Niño/La Niña cycles to the Pacific Decadal Oscillation may play a role in the amount of gloom. Iacobellis says the contest is really a crapshoot, but it also has a way of making the gloom seem less gloomy. Each cloud-covered day is one step closer to victory.

Each gloomy day, too, is a chance to think about what’s happening out there:  cold water, enormous swirls of clouds, that lunk of an inversion layer pinning the gray above our heads. Watch out, neighbors, here I come. And now I have even more to talk about.

Today’s playlist:  Crowded House, Weather With You; Len, Steal My Sunshine; The Like, June Gloom

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Images  Top: Eric Gangnath  Middle: marya  Bottom: Steve Lyon

Snapshot: Roadside Lupine

One enthralling aspect of writing a book about roads and nature is that the world suddenly blossoms with odd interactions and novel ecosystems. Once you’re attuned to how our transportation infrastructure alters landscapes, every walk or drive becomes an occasion to observe some strange geo/hydro/ecological dynamic. To wit: I’m fascinated by roads as concentrators of water and stimulators of vegetative growth. Rain falls on peaked roadway; sheets off impermeable surface; and irrigates plants in adjacent drainage ditches — as in this roadside strip of lupine, which I photographed earlier this year near Phoenix. Roads become linear wildflower corridors wending their way across otherwise austere landscapes, brilliant floral ribbons threaded through muted greens and browns.

Have you noticed any surprising relationships between roads, water, topography, and plants? I’d love to hear about them in the comments.

Redux: Of Heisenbergs and Beethovens

The historian of science Owen Gingerich died on May 28. We’re re-posting this essay, which originally appeared on June 10, 2011, because it involves the author’s personal encounter with him. The references to dates (e.g., “A few months ago”) remain as in the original post.

The 16-year-old student has an idea, but she doesn’t have the maths to support it. She does, however, have a drawing. She submits it to her tutor. He examines it, then delivers his verdict.

“This is not science,” he says. “This is story-telling.”

The scene is from Tom Stoppard’s play Arcadia. The setting is an English country house in 1812. The student has been wondering why a steam engine can not re-energize itself forever, and she believes she has arrived at the answer: heat loss. And, yes, she understands the implications of a physics whose arrow of time goes in only one direction.

“So the Improved Newtonian Universe must cease and grow cold,” her tutor says. By “Newtonian universe” he means not just the cosmos but the whole clockwork kit and caboodle.

Classical physics. Cause and effect. Determinism.

“Dear me,” he adds, dryly.

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